Life Quality Outcomes In Children And Young People With Neurological And Developmental Conditions - Concepts, Evidence And Practice

Health care professionals need to understand their patients’ views of their condition and its effects on their health and well-being. This book builds on the World Health Organization's concepts of 'health', 'functioning' and 'quality of life' for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications.

Readership:

• Health care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons.
• Frontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible.
• Students in the health professions and others in related fields (such as social work).

Gabriel M Ronen, MD, MSc (health research methodology), FRCP(C) (paediatric neurology) Professor of Paediatrics, McMaster University, Hamilton, Ontario, Canada
As a paediatric neurologist he has a wide range of experience with children and youth with neurological conditions. He has been an active clinician, researcher, teacher and mentor with a particular interest in children with epilepsy.

Peter L Rosenbaum, MD, CM, FRCP(C) Professor of Paediatrics, CanChild Centre for Childhood Disability Research, IAHS Building Room 408, McMaster University, 1400 Main Street West, Hamilton ON L8S 1C7 Canada
Research Chair in Childhood Disability Research, Mentoring and Dissemination As a Developmental Paediatrician he has had a wide-ranging experience of childhood disability, with a particular interest in cerebral palsy. For the past 40 years he has been an active clinician, researcher, teacher, mentor, author and editor. In 1989 he co-founded CanChild Centre for Childhood Disability Research and in 2000 he was recognized with the Canadian Paediatric Society's highest award, the Ross Award. Honorary degree Doctor of Science from Universite Laval (2005). In 2007 he was awarded the AACPDM's first Mentorship Award. He is the North American Editor for Developmental Medicine and Child Neurology journal from Mac Keith Press.