The Letter E: A powerful story of hope, love, and family resilience. Learning to live with epilepsy.
商品資訊
ISBN13：9780645276299
出版社：Nightstand Pr
作者：Claire Audibert
出版日：2022/06/08
裝訂：平裝
規格：22.9cm*15.2cm*1.8cm (高/寬/厚)
商品簡介
Claire has just given birth to a seemingly healthy baby boy and is ready to get into the work of being a mother. She never expected it to be easy, but in the weeks that follow, the new parents find that their parenthood journey is going to be very different from what they'd imagined.
Suddenly, they're thrust into a medical world where they need to learn on the go, whilst also learning to be new parent to a baby whose future is so uncertain.
The path to diagnosis is agonisingly slow, but once they know, they find an inner strength to fight for their baby and help him reach his potential.
This memoir explores the journey of learning to live with an incurable disease and finding ways to survive each day and find the light. More than anything, it is a story about love and hope, and redefining their vision of a family.
An honest and moving tale about the path to diagnosis and then 'acceptance' of the diagnosis label. As Eliot receives a diagnosis, Claire must advocate for him as an individual to not be defined by any preconceived notions of that very diagnosis.
- Scotty Sims, Co-founder and Director, KCNQ2 Cure Alliance
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