Lymphoedema United - You are NOT alone!: Lymphoedema stories from around the world - Volume 1

If you are reading this, the chances are that you either have lymphoedema (lymphedema), know someone that does, or work in the medical profession caring for people with this lifelong and sometimes debilitating disease.

Lymphoedema affects millions of people around the world, yet it is often a lottery whether the appropriate level of healthcare is received. That can leave a person living with this lifelong disease feeling desperate, neglected, and alone. You are NOT alone!

Advocates Amy Rivera and Matt Hazledine are joined by 34 people living with lymphoedema from 14 countries from around the world, who share their personal experiences and top tips, to help you to live better with lymphoedema.

Many of us experience a varying level of professional care from medical experts IF you have been successful in getting a diagnosis. Many are still seeking a diagnosis, which means that they are unlikely to be receiving the appropriate health care and advice on self-management techniques, which is important during the early stages of lymphoedema.

This can result in people feeling helpless, alone and desperate. Lymphoedema can be extremely challenging to both physical and mental health, especially when coming to terms with the diagnosis and adapting to this life-changing condition.

Some people are willing to talk about their health issue, while others keep it hidden. Some people confidently wear their compression garments in public, while others hide it under baggy clothes and some people just don't or can't go out at all.

This book includes personal experiences and tips from 34 people from 14 different countries. Some have primary and some have secondary lymphoedema, effecting their arms, legs, trunk, head, neck, and pubic area. They were willing to share their story to reassure others they are not alone. Some guests have included their contact details, so, if you relate to their circumstances, you can connect with them directly.