The AEC Syndrome Sourcebook: A Guide to Hay-Wells Syndrome for Patients and Families

ISBN13：9798300112707
出版社：Independently published
作者：Cheryl White Mat
出版日：2024/11/15
裝訂：平裝
規格：22.9cm*15.2cm*0.6cm (高/寬/厚)
關鍵字： The AEC Syndrome Sourcebook: A Guide to Hay-Wells Syndrome for Patients and Families、 The、 AEC、 Syndrome、 Sourcebook、 Guide、 to、 Hay、 Wells、 for、 Patients、 and、 Families、 Independently published、 Cheryl White Mat、外文書、醫療保健、健康與健身、

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Living with AEC syndrome, also known as Hay-Wells syndrome, can feel overwhelming, but you are not alone. This comprehensive guide is designed to empower patients, families, and caregivers with the knowledge and tools needed to navigate the challenges of this rare genetic condition.
Inside this sourcebook, you'll discover:

Clear, accessible explanations of AEC syndrome's causes, symptoms, and treatments.
Practical strategies for managing medical care, including chronic wounds, dental issues, and cleft palate repair.
Real-life stories from patients and families, offering inspiration and firsthand insights.
Emotional and social support to build confidence, resilience, and connections within the AEC community.
Resources and tools for advocacy, education, and everyday life.

Whether you're a newly diagnosed patient, a parent navigating your child's care, or a caregiver looking for support, The AEC Syndrome Sourcebook is your essential companion. Filled with expert knowledge, practical advice, and compassionate guidance, this book will help you take control of your journey and embrace the possibilities ahead.

ABOUT THE AUTHOR

Cheryl White has been a dedicated health science writer for more than 30 years. With an undergraduate degree in Health Sciences and two master's degrees, Cheryl's passion for helping people live healthier lives comes through in her writing, making complex health issues understandable and accessible for all readers.

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