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The Crigler Najjar Syndrome Sourcebook: A Comprehensive Guide for Parents and Families
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ISBN13：9798303914988
出版社：Independently published
作者：Cheryl E. White Mat
出版日：2024/12/16
裝訂：平裝
規格：22.9cm*15.2cm*0.6cm (高/寬/厚)
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Navigating life with a rare condition like Crigler-Najjar Syndrome (CNS) can be overwhelming, but you are not alone. This comprehensive guide offers patients, families, and caregivers the knowledge and tools needed to manage this complex disorder with confidence.
From understanding the genetic basis of CNS to exploring cutting-edge treatments like gene therapy, The Crigler-Najjar Syndrome Sourcebook delves into every aspect of this condition. With practical advice on managing daily care, phototherapy, and diet, as well as tips for navigating the healthcare system and advocating for yourself or a loved one, this book is a lifeline for those affected by CNS.
Featuring real patient stories of resilience and hope, alongside expert insights into the latest research and therapies, this guide offers both compassion and actionable information. Whether you are caring for a child with CNS, transitioning to adulthood, or seeking the latest advancements in treatment, this book is your trusted companion on the journey.
Empower yourself with the knowledge to face CNS head-on and discover a community of support that understands your challenges-and your dreams. ABOUT THE AUTHOR Cheryl E. White has been a dedicated health science writer for more than 30 years. With an undergraduate degree in Health Sciences and two master's degrees, Cheryl's passion for helping people live healthier lives comes through in her writing, making complex health issues understandable and accessible for all readers.
From understanding the genetic basis of CNS to exploring cutting-edge treatments like gene therapy, The Crigler-Najjar Syndrome Sourcebook delves into every aspect of this condition. With practical advice on managing daily care, phototherapy, and diet, as well as tips for navigating the healthcare system and advocating for yourself or a loved one, this book is a lifeline for those affected by CNS.
Featuring real patient stories of resilience and hope, alongside expert insights into the latest research and therapies, this guide offers both compassion and actionable information. Whether you are caring for a child with CNS, transitioning to adulthood, or seeking the latest advancements in treatment, this book is your trusted companion on the journey.
Empower yourself with the knowledge to face CNS head-on and discover a community of support that understands your challenges-and your dreams. ABOUT THE AUTHOR Cheryl E. White has been a dedicated health science writer for more than 30 years. With an undergraduate degree in Health Sciences and two master's degrees, Cheryl's passion for helping people live healthier lives comes through in her writing, making complex health issues understandable and accessible for all readers.
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