滿額折
The Gerstmann-Sträussler-Scheinker Disease Sourcebook: A comprehensive Guide for Patients and Families
商品資訊
ISBN13：9798304622110
出版社：Independently published
作者：Stephanie E. White Mat
出版日：2024/12/23
裝訂：平裝
規格：22.9cm*15.2cm*0.7cm (高/寬/厚)
商品簡介
相關商品
商品簡介
About This Guide
When a rare diagnosis like Gerstmann-Str酳ssler-Scheinker (GSS) disease enters your life, it brings with it more questions than answers. What does this mean for the future? How can symptoms be managed? Where can you turn for support? This sourcebook is your essential companion, designed to provide the knowledge, resources, and reassurance you need to navigate the challenges of GSS.
Written with patients, families, and caregivers in mind, this comprehensive guide unpacks the complexities of GSS in clear, accessible language. From understanding the science of prion diseases to recognizing symptoms, exploring genetic testing, and planning for long-term care, this book offers a wealth of practical information. Real-life patient stories bring the human experience of GSS to life, illustrating resilience, advocacy, and hope.
Discover strategies for managing daily life, building a strong support network, and addressing the emotional and psychological toll of this progressive condition. Learn how advancements in genetic counseling and experimental therapies are shaping the future for families affected by GSS. Whether you're seeking answers, support, or inspiration, this sourcebook is here to empower you on every step of your journey.
The Gerstmann-Str酳ssler-Scheinker Disease Sourcebook is more than a medical guide-it's a testament to the strength of the GSS community and a beacon of hope for anyone navigating this challenging diagnosis. Together, we can find clarity, connection, and the courage to face the future. ABOUT THE AUTHOR Steph White is an accomplished health science writer with over 30 years of experience, dedicated to transforming complex medical information into clear, actionable insights. With an undergraduate degree in Health Sciences and two master's degrees, she brings a deep understanding of medical topics to her work, making it accessible to readers from all walks of life. Her passion for health education is not only rooted in her professional background but also in her personal journey living with a rare disease. This firsthand experience has shaped her empathetic approach, enabling her to connect with patients and families navigating the uncertainties of rare diagnoses.
Throughout her career, Steph has worked on numerous projects aimed at educating patients, caregivers, and healthcare providers, earning a reputation for technical accuracy and relatable language. Her writing bridges the gap between medical science and everyday understanding, reflecting her commitment to empowering individuals with knowledge. Steph's unique blend of expertise and compassion shines through in her work, inspiring hope and fostering understanding among her readers.
When a rare diagnosis like Gerstmann-Str酳ssler-Scheinker (GSS) disease enters your life, it brings with it more questions than answers. What does this mean for the future? How can symptoms be managed? Where can you turn for support? This sourcebook is your essential companion, designed to provide the knowledge, resources, and reassurance you need to navigate the challenges of GSS.
Written with patients, families, and caregivers in mind, this comprehensive guide unpacks the complexities of GSS in clear, accessible language. From understanding the science of prion diseases to recognizing symptoms, exploring genetic testing, and planning for long-term care, this book offers a wealth of practical information. Real-life patient stories bring the human experience of GSS to life, illustrating resilience, advocacy, and hope.
Discover strategies for managing daily life, building a strong support network, and addressing the emotional and psychological toll of this progressive condition. Learn how advancements in genetic counseling and experimental therapies are shaping the future for families affected by GSS. Whether you're seeking answers, support, or inspiration, this sourcebook is here to empower you on every step of your journey.
The Gerstmann-Str酳ssler-Scheinker Disease Sourcebook is more than a medical guide-it's a testament to the strength of the GSS community and a beacon of hope for anyone navigating this challenging diagnosis. Together, we can find clarity, connection, and the courage to face the future. ABOUT THE AUTHOR Steph White is an accomplished health science writer with over 30 years of experience, dedicated to transforming complex medical information into clear, actionable insights. With an undergraduate degree in Health Sciences and two master's degrees, she brings a deep understanding of medical topics to her work, making it accessible to readers from all walks of life. Her passion for health education is not only rooted in her professional background but also in her personal journey living with a rare disease. This firsthand experience has shaped her empathetic approach, enabling her to connect with patients and families navigating the uncertainties of rare diagnoses.
Throughout her career, Steph has worked on numerous projects aimed at educating patients, caregivers, and healthcare providers, earning a reputation for technical accuracy and relatable language. Her writing bridges the gap between medical science and everyday understanding, reflecting her commitment to empowering individuals with knowledge. Steph's unique blend of expertise and compassion shines through in her work, inspiring hope and fostering understanding among her readers.
您曾經瀏覽過的商品
購物須知
外文書商品之書封，為出版社提供之樣本。實際出貨商品，以出版社所提供之現有版本為主。部份書籍，因出版社供應狀況特殊，匯率將依實際狀況做調整。
無庫存之商品，在您完成訂單程序之後，將以空運的方式為你下單調貨。為了縮短等待的時間，建議您將外文書與其他商品分開下單，以獲得最快的取貨速度，平均調貨時間為1~2個月。
為了保護您的權益，「三民網路書店」提供會員七日商品鑑賞期(收到商品為起始日)。
若要辦理退貨，請在商品鑑賞期內寄回，且商品必須是全新狀態與完整包裝(商品、附件、發票、隨貨贈品等)否則恕不接受退貨。